July 11, 2012

So things are starting to get back to normal around here.  Today the boys actually stayed up to their nap time, but then they did not wake up for dinner at all.  That is still better than them falling asleep at 11am and sleeping until 4am the next morning.  I am hoping this is a sign that they are slowly getting back on their schedules.  I do know that Aiden has been showing a lot more behaviors lately, he's been having more and more meltdowns.  It has been a while since he has been like this and I am getting a little bit worried about it.  I have been racking my brain as to what could be triggering these meltdowns and I am not coming up with anything other than his goals have become harder, but that is the normal course of things.  I just do not get why that would all of a sudden cause the increase in meltdowns because he never had a problem being pushed before.  Do not get me wrong, he would always have some things to say, or scream, but he would not have a full out meltdown do to it.  Anyways, that being said, the boys have not been on the best terms with one another for a little while; but today they were in good moods when it came to each other.  They were running around the house laughing and babbling to one another, it was just too cute.  Scott has been becoming attached to carrying a blanket, or as he says a "be be," with him, but he gets upset and frustrated because either it will not stay on him while he is walking around or sitting at the table or it becomes too heavy and bulky for what he is trying to do.  So with this and the fact that when he is wearing his compression outfit, either the SPIO one or the one I made, I call him super man, because that is what he looks like, like he's wearing a super hero suit.

  This got me thinking about capes, so I made the boys their very own super hero capes. 

They loved them, they ended up sleeping in them it was too cute.  But it did the trick, I figured for Scott it would kind of be like a blanket that is just tied to his back, and that's exactly what it was.  When Scott started getting tired, he laid down on the couch and turned his cape around to look like a really long bib and cuddled under his "be be;" it was great.  For the longest time after I put their capes on the boys just spun, around and around, holding their capes out and watching them fly behind them. 

They were doing this all over the house, just spinning everywhere, it was making me dizzy watching them.  Needless to say, they were having a blast and it has been a while since they have been this happy, let alone this happy sharing the day with each other. I am hoping this happiness with each other continues through the weekend because we have a busy and fun weekend planned for the boys.  First off, Saturday is Rhubarb Days over in Sumner, I cannot wait it has been a long time since I have had a good rhubarb pie, or rhubarb period.  I cannot wait to let the boys try some and see if they like it or not.  Then Sunday after church we are heading up to Issaquah to the train museum for Day Out With Thomas.  That is the big one that I cannot wait for, we get to ride on a life size Thomas steam engine, I cannot wait to see the boys' faces, I think they will be excited; esspecially Scott, Thomas is his favorite.  With that being said, I need to get back to my schoolwork, I want to get it all done before this weekend, that way I do not have to worry about it and can have a much needed break.



Summertime thinking

We have been having our good days and bad days lately.  We had whooping cough a few months ago, and then just two weeks ago we had hand foot and mouth. We have no luck when it comes to immune systems, so if it is going around, we are surely to get it, and sometimes we get it twice. 
We are just now starting to get back on a routine schedule after being on quarantine, and then a pressure system comes into town and plays with Aiden's ears.  He had tubes placed in his ears when he was two, and they stayed in for a little over a year, which is a miracle.  But they fell out about 6 months ago and while he has not had any ear infections (thankfully) any time there is a pressure system or the weather changes suddenly, he gets a lot of pressure in his ears to the point of excruciating pain.  That has been our weekend and beginning of the week so far.  The kicker is that the doc won't do anything because he doesn't have an ear infection so he sees there is nothing to do because his ears do drain.  I say there should be something they can do (such as putting new tubes in) so that the pressure can escape just like the fluid.
Sorry about my rant, I just really do not like the doctors we have.  Considering I have been procrastinating on scheduling Aiden's 6 month neuro check up, both the boys were suppose to see the developmental pediatrician on post (but I just don't like him considering he is the one who said Scott was on the spectrum but he was not going to diagnose because he wanted to test Scott's cognitive ability when he was 5).  Plus I am a couple of months behind on seeing my doctor, but I have a feeling I know what she is going to say to me and I do not really want to hear it.
So on to new things....
We have decided to homeschool the boys for at least this next school year, and we have even decided upon a curriculum.  So now the big thing is getting the boys' IEPs to state that and to figure out their school time schedule and activities. 
In the meantime we are going to be working on potty training, as soon as I get some more laminant (we seem to run out of that all the time), I will be able to post a reward chart and potty schedule for them to see and follow. 
Scott is talking a lot more now, I love to hear his little voice.  He cracks me up with some of the things that he says, even if he is just repeating, it is so much cuter coming from him. 
I am still in the middle of setting up my webpage online to start selling therapy equiptment.  I have my pricing scheme all worked out, I just need to make a few prototypes and take pictures of them.  I say prototypes, not because I haven't made them before, but because I do not have pictures of any of the ones I have previously made, so now I have to make more (which makes me very happy, I love to sew!).  I did have to take a break, because I broke the sewing machine a friend of mine was letting me use (I actually think it decided to go on strike because I had been using it so much lately).  I was blessed with the fact that Eric got a refund from paying for his LPN license last year, that I was able to buy a new one.  I just feel really bad that I broke my friend's.
On the other side of things, my school is going great.  At the moment I am in a neuroscience class and my team chose to do a presentation on autism, I was happy about that because this week the individual assignments for the class are to look at each other's team assignments and evaluate it.  I feel confident about my team's presentation because I was able to bring a lot more knowledge to the class than just what the book stated (using accredited sources, of course).  I just cannot wait to see what others will say about the presentation.
Eric's work is going well, he is stuck on overnights for the next two weeks, but after that he is back on days so we will all be on the same schedule again. The hospital is doing a needle change over, they are changing the types of needles that they are going to be using, and Eric is one of the leaders on that committee, which is good, even if he thinks it's a pain in the butt.  He is also being considered for a few other committees which will help him when he is looking at being promoted, which he goes to the board next month.  He is staying pretty busy, but he will be able to be home a bit more, or at least be awake when he is home a bit more, for the boys' sake.  They were missing him so badly when he was working over nights and then when he was at WLC, because they never saw him; he was either asleep when he was home during the day, or he was not home until the boys were already in bed.  But now they will get to see him more.